Easing the transition of parenting a child with Cystic Fibrosis
This new journey that you are beginning might seem overwhelmingly difficult, more than a bit tough, and plain unreal. Trust us, we know and understand first hand. We've been there, we are still here, and we want to be a resource for you from day 1! We found some useful items along the way and we not only want to share them with you, but give them to you. Parenting at times can be overwhelming in itself, but you have an added diagnosis of cystic fibrosis. It's hard to imagine, but this can be an amazing thing in your life. The people you meet, the care teams who love your child, and the relationship you will have for this child is unmatched as you fight for him/her every single day. When it seems like it might be too much, write in our blog and ask other parents your questions! We are in this together!
We have your back!
Enzymes, check. Diapers & wipes, double check. Applesauce, mixing bowl, spoon.... Check, check, check.
The list is never ending. It may seem like you're packing for a vacation, but the 4 hour long appointment, visiting family, or a "short" visit to the pediatrician all require you to be prepared. We found it extremely useful to have everything strapped to our back. Take 2 Lungs 1 Fight with you wherever you go. We truly have your back!Learn about our Care Packages
- 1,000+ NEW CASES OF CYSTIC FIBROSIS DIAGNOSED EACH YEAR
- 100+ BACKPACKS GIVEN TO DESERVING FAMILIES
- 41 MEDIAN AGE OF SURVIVAL FOR A PERSON WITH CYSTIC FIBROSIS
Karen Blackburn, A CF Grandmother’s thoughts.
As the grandmother of a soon to be 3 year old with Cystic Fibrosis, I realize my family is still very new to this disease. Here are a few things I'm thankful for: All of the CF families that came before us. The families that struggled to understand CF, worked tirelessly to raise awareness and…
Deryl Sweeney Testimonial
“I can still remember the moment having a son with cystic fibrosis became real. The tests were done, the results were in, leaving my wife and I devastated. Neither of us had ever known anyone with cf, or had any idea what was involved in caring for our newborn son.…